Life Experiences and Advice for Living with chronically Ridiculous illnesses
Having a chronic illness that has no cure and only a little research often makes someone vulnerable to try anything once. Some people pray off of that vulnerability and try to market “natural” products. These people take advantage of the poor science education most of America receives by making their claims sound scientific. They usually…
The Dysautonomia International Conference was in July in Washington DC. I was able to attend this year and it was a really impressive and informative conference. I flew to Dulles, Virginia a day early from Denver because I have never been to Washington DC and wanted a day to recover from traveling. Friday my parents…
Did you know that October is Dysautonomia Awareness month? Raising awareness is so important for Dysautonomia patients. Even though there are a lot of us, there are so many people (including doctors) who don’t know anything about Dysautonomia. The Dysautonomia International Conference had an excellent talk on things you can do to raise awareness. Many…
Having a chronic illness that has no cure and only a little research often makes people vulnerable to try nearly anything once. As a result, some scam artists prey off of that vulnerability and try to market products that do absolutely nothing or very little. Each Sunday I will investigate a treatment- do their claims…
I usually talk and write about POTS and Dysautonomia. Like many people with POTS I also have hEDS (Ehler’s Danlos). The Ehler’s Danlos National Foundation (EDNF) had a conference this weekend. One doctor, Dr. Lavallee, managed to outrage most of the EDS community with just one slide. Dr. Lavallee put up this slide. If you…
Questions about travel pop up a lot and I can certainly understand why traveling with POTS is a battle. When flying you face problems such as security lines, standing to get off the plane, change in pressure, change in elevation, and a lot of walking. Driving doesn’t offer a wonderful alternative to flying. Often driving…