Update: Because I’m Special Like That

Like a lot of people with Ehler’s Danlos III, I have back problems and hip problems. In the past, I have received epidurals for the pain and the injections have been lifesavers.  This time my body decided to be uncooperative. The first injection went fine, but as they began the second injection Cerebral Spinal Fluid…

The Diagnosis Dilemma

POTS affects between 500,000 and 1,000,00 in the USA alone, according to Dysautonomia International, but isn’t very well known in the medical community. It is more common than Parkinson’s and Multiple Sclerosis- so why has no one heard of it? Some of this is due to that POTS was just recently given the name POTS…

I will answer your questions!

Need advice on living with POTS? Questions on POTS? You’re in luck! POTS patients often can’t just ask their doctor or find an answer on the internet. Some doctors haven’t even heard of POTS and there just isn’t that much information on the internet. We all need a forum for questions and answers! As many…

History of POTS

Postural Orthostatic Tachycardia Syndrome is a type of dysautonomia. POTS has just recently begun to be recognized within the medical community. Patients with POTS commonly go undiagnosed for a year or more. Some doctors don’t recognize POTS as a genuine condition and claim it “isn’t real”; even more doctors simply do not understand. POTS just…