Life Experiences and Advice for Living with chronically Ridiculous illnesses
People with chronic illnesses need all the support they can get- especially from their family. Here are some tips for truly supporting them. 1. Don’t Just Support Strangers, Support Your Family Most of my family are generous caring people- especially towards strangers. I regularly see them support children they don’t know and throw fundraisers for…
Finding the right doctor is a daunting task- especially when you have POTS. I think it is important to change the way we view doctors when you have a condition that the average doctor knows so little about. Instead of going to a doctor and taking their way as law, it is best to find…
I had at least 5 different doctors inform me I would grow out of POTS. As a result, I stopped living and just survived, always waiting.
Feel free to share! All facts are from Dysautonomia International.
Dear Healthy People, There are a lot of articles out there about what you should stop saying to sick people. Here are some things healthy people need to think about before they say because they are hurtful. Please stop saying and doing the following. You are being insensitive and ignorant. I try so hard to…
Up until recently I had given up going to concerts. It just seemed impossible with POTS. A lot of times we are required to give up activities we love for our condition. I think it is important to still have a life- to have things to live for and look forward to. So here are…
The Poor Man’s Tilt Table Test is a helpful tool to see if you should see a doctor about an official TTT or see a POTS specialist.
For how common POTS is there is some exceptionally bad information out there. As a result, people are getting the wrong ideas about POTS. Dealing with misconceptions constantly becomes frustrating.
Dating with a chronic illness can complicate things. Here are the 7 types of people I’ve run into: 1. The One Who Ignores Your Illness A lot of people have no idea how to interact with someone with a disability. While some people may attack the issues you face head on, these people avoid the…