Life Experiences and Advice for Living with chronically Ridiculous illnesses
Having Cancer is News to Me Last week I was diagnosed with cancer by an ultrasound technician before the test even began. I sat down and she sais, “so we are looking at the state of your thyroid cancer.” As far as I knew I was just having a thyroid nodule checked. I was nervous,…
There are many experiences common to every human. Most of us will go through these, so we can easily relate and empathize. Nearly everyone is affected by the common cold. Therefore, when someone says they have a cold it is easier be understanding and supportive. Memories of soup, towers of tissues, and feeling miserable immediately come to mind….
For those of you who don’t know what I’m talking about, Cake is a movie with a Jennifer Anniston about a woman in chronic pain. When my partner first downloaded the film I was really excited to watch it. Chronic pain is a real struggle for so many people. Our story will finally be told!…
Need advice on living with POTS? Questions on POTS? You’re in luck! POTS patients often can’t just ask their doctor or find an answer on the internet. Some doctors haven’t even heard of POTS and there just isn’t that much information on the internet. We all need a forum for questions and answers! As many…
Postural Orthostatic Tachycardia Syndrome is a type of dysautonomia. POTS has just recently begun to be recognized within the medical community. Patients with POTS commonly go undiagnosed for a year or more. Some doctors don’t recognize POTS as a genuine condition and claim it “isn’t real”; even more doctors simply do not understand. POTS just…
I am currently working on an article about the POTS Treatment Center in Dallas. If you have been and would like to participate in my survey: https://www.surveymonkey.com/s/YK7BY59?fb_ref=Default There is room to share experiences, good or bad. I am in no way affiliated with POTS Treatment Center in Dallas. Thank you!
Medical marijuana is a hugely controversial topic, but it doesn’t need to be. Current research is biased towards finding the dangers of marijuana instead of looking at possible medical use. Researchers who have studied cannabis have found many uses for marijuana (in adults).
Earlier today a discussion regarding Gardasil began in a support group I am a member of. Many people are claiming that Gardasil, the HPV (human papilloma virus) vaccination, caused their POTS. As a result of the discussion, I began to some research of my own into these claims. The cause of POTS is primarily unknown….
Support groups are wonderful for those of us with illnesses others just don’t get. No one outside the POTS community thinks jokes about fainting, salt, or compression stockings are funny. No one else can relate to the mortifying events like fainting during sex. Groups on Facebook can be great and convenient, but also hostile and…
When you have an illness that isn’t understood well by doctors it is common for you to have to learn from the internet. Now for those people who haven’t been to medical school (um like all of us) it can be hard to find good, reliable, and clear information. So many times people end up…