Life Experiences and Advice for Living with chronically Ridiculous illnesses
Dear Healthy People, There are a lot of articles out there about what you should stop saying to sick people. Here are some things healthy people need to think about before they say because they are hurtful. Please stop saying and doing the following. You are being insensitive and ignorant. I try so hard to…
Up until recently I had given up going to concerts. It just seemed impossible with POTS. A lot of times we are required to give up activities we love for our condition. I think it is important to still have a life- to have things to live for and look forward to. So here are…
People should not demand someone with a disability to look at themselves in whatever way you see fit. Don’t complain that they talk about their illness too much. My disability does not define me, but it has shaped who I am. I have to deal with it every single day; it is a part of my life and I will talk about it if I want to.
The Poor Man’s Tilt Table Test is a helpful tool to see if you should see a doctor about an official TTT or see a POTS specialist.
For how common POTS is there is some exceptionally bad information out there. As a result, people are getting the wrong ideas about POTS. Dealing with misconceptions constantly becomes frustrating.
Dating with a chronic illness can complicate things. Here are the 7 types of people I’ve run into: 1. The One Who Ignores Your Illness A lot of people have no idea how to interact with someone with a disability. While some people may attack the issues you face head on, these people avoid the…
The decline in quality of life we experience with POTS is comparable to someone with congestive heart failure. So it isn’t surprising that our social lives, frankly, suck. Finding friends that understand when you have to cancel is incredibly difficult. Finding friends who understand to the point where they don’t insist on activities that include…
Doctors insist that POTS patients make many lifestyle changes. One of the easiest lifestyle changes you can make is wearing compression garments. Compression garments work to raise low blood pressure, prevent swelling, and minimize blood pooling. Compression garments aren’t a magic fix, but they help many POTS patients enough to use them daily. Myths Compression…
POTS affects between 500,000 and 1,000,00 in the USA alone, according to Dysautonomia International, but isn’t very well known in the medical community. It is more common than Parkinson’s and Multiple Sclerosis- so why has no one heard of it? Some of this is due to that POTS was just recently given the name POTS…
For those of you who don’t know what I’m talking about, Cake is a movie with a Jennifer Anniston about a woman in chronic pain. When my partner first downloaded the film I was really excited to watch it. Chronic pain is a real struggle for so many people. Our story will finally be told!…