Life Experiences and Advice for Living with chronically Ridiculous illnesses
Dear Healthy People, There are a lot of articles out there about what you should stop saying to sick people. Here are some things healthy people need to think about before they say because they are hurtful. Please stop saying and doing the following. You are being insensitive and ignorant. I try so hard to…
People should not demand someone with a disability to look at themselves in whatever way you see fit. Don’t complain that they talk about their illness too much. My disability does not define me, but it has shaped who I am. I have to deal with it every single day; it is a part of my life and I will talk about it if I want to.
Note: To be clear I am not saying that invisible illness is more difficult than visible illness. I am not comparing or ranking struggles, just pointing out differences so we can better understand each other better. Each brings its own specific problems, and both are incredibly difficult to deal with. It has been on my mind…
Chronic illness is not regularly represented in movies and TV shows. Only recently have movies and TV shows about chronic illness been made popular. For example, The Fault in Our Stars, a love story about two teenagers with cancer was wildly popular with nearly $125,000 in box office revenue. Any representation of chronic illness is…
When my parents dropped me off for my first day of camp when I was five they expected it to be tough. It was tough, but just for them. I was ready to leave and meet new people and to be on my own. When my dad came to visit me at lunch I even…
Dating with a chronic illness can complicate things. Here are the 7 types of people I’ve run into: 1. The One Who Ignores Your Illness A lot of people have no idea how to interact with someone with a disability. While some people may attack the issues you face head on, these people avoid the…
The decline in quality of life we experience with POTS is comparable to someone with congestive heart failure. So it isn’t surprising that our social lives, frankly, suck. Finding friends that understand when you have to cancel is incredibly difficult. Finding friends who understand to the point where they don’t insist on activities that include…
Within the past couple months, my Facebook advertisements have been all about Pillpack. I decided to try PillPack out and share my experience. In theory, Pillpack is revolutionary. Pillpack acts as a pharmacy, pre-wrapping each dose of your medicine based on the time of day and sends you all your meds by mail. PillPack is…
Questions about travel pop up a lot and I can certainly understand why traveling with POTS is a battle. When flying you face problems such as security lines, standing to get off the plane, change in pressure, change in elevation, and a lot of walking. Driving doesn’t offer a wonderful alternative to flying. Often driving…
POTS affects between 500,000 and 1,000,00 in the USA alone, according to Dysautonomia International, but isn’t very well known in the medical community. It is more common than Parkinson’s and Multiple Sclerosis- so why has no one heard of it? Some of this is due to that POTS was just recently given the name POTS…