Life Experiences and Advice for Living with chronically Ridiculous illnesses
Support groups are wonderful for those of us with illnesses others just don’t get. Groups on Facebook can be great and convenient, but also hostile and dramatic. I know illness can lead to high tension, but we are supposed to be supporting each other! So here are some things I noticed happening a lot; things…
The medical profession is supposed to be about helping people. I have been lucky enough to have some wonderful, caring, and compassionate health care professionals. I have also had some absolutely horrific experiences healthcare professionals. Dealing with doctors and nurses who don’t understand and make my life more difficult has been one of the hardest…
Like a lot of people with Ehler’s Danlos III, I have back problems and hip problems. In the past, I have received epidurals for the pain and the injections have been lifesavers. This time my body decided to be uncooperative. The first injection went fine, but as they began the second injection Cerebral Spinal Fluid…
POTS affects between 500,000 and 1,000,00 in the USA alone, according to Dysautonomia International, but isn’t very well known in the medical community. It is more common than Parkinson’s and Multiple Sclerosis- so why has no one heard of it? Some of this is due to that POTS was just recently given the name POTS…
Having Cancer is News to Me Last week I was diagnosed with cancer by an ultrasound technician before the test even began. I sat down and she sais, “so we are looking at the state of your thyroid cancer.” As far as I knew I was just having a thyroid nodule checked. I was nervous,…
There are many experiences common to every human. Most of us will go through these, so we can easily relate and empathize. Nearly everyone is affected by the common cold. Therefore, when someone says they have a cold it is easier be understanding and supportive. Memories of soup, towers of tissues, and feeling miserable immediately come to mind….
For those of you who don’t know what I’m talking about, Cake is a movie with a Jennifer Anniston about a woman in chronic pain. When my partner first downloaded the film I was really excited to watch it. Chronic pain is a real struggle for so many people. Our story will finally be told!…
Need advice on living with POTS? Questions on POTS? You’re in luck! POTS patients often can’t just ask their doctor or find an answer on the internet. Some doctors haven’t even heard of POTS and there just isn’t that much information on the internet. We all need a forum for questions and answers! As many…
Postural Orthostatic Tachycardia Syndrome is a type of dysautonomia. POTS has just recently begun to be recognized within the medical community. Patients with POTS commonly go undiagnosed for a year or more. Some doctors don’t recognize POTS as a genuine condition and claim it “isn’t real”; even more doctors simply do not understand. POTS just…
I am currently working on an article about the POTS Treatment Center in Dallas. If you have been and would like to participate in my survey: https://www.surveymonkey.com/s/YK7BY59?fb_ref=Default There is room to share experiences, good or bad. I am in no way affiliated with POTS Treatment Center in Dallas. Thank you!